Learn how your sponsorship or participation can help change the future
Whether in person or virtually
we run to bring awareness + support to the DESSH mission.
#Dash4DESSH is the DESSH Foundation’s activity that brings the rare disease community together. The ‘run’ is athletic-optional with a focus on fundraising and fun. DO I NEED TO RUN TO PARTICIPATE? Absolutely not! You can meet at the park, street corner, the beach, or anywhere – get out of the house and move. The participants in #Dash4DESSH can run/walk independently or on individual teams across the globe. We encourage everyone to wear our #DASH4DESSH t-shirt and take photos. 100% of the $20 registration fee is set aside for DESSH programs, education, and research.
Country with registered DESSH patient
Why walk, run or meet-up?
Why donate? DESSH is a lifelong condition that significantly impacts the lives of those affected and their families. There is no treatment or cure – YET! Together we have the chance to fund life-changing research and increase global awareness. This research will lead to actionable treatments which will make a meaningful difference in the lives of those affected by DeSanto-Shinawi Syndrome.
Please join us from Sept. 28 - Oct. 6 for our worldwide DeSanto-Shinawi Syndrome run #Dash4DESSH
Questions?
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Absolutely not! This is a walk, run, crawl or strut event that is very relaxed for most participants.
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Anywhere! This is a virtual event. You can set your own location around the world. Dash independantly at your desired location, or dash with a team at a set location.
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Register up to the date of the event, September 2. However if you want to get a shirt or gear, you need to order in advance for shipping purposes.
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Registration costs $20USD. Every dollar donated goes directly to DESSH Foundation programs and services that fulfill our mission. We have no paid staff but have annual expenses such as maintaining the website. Your generous donation is tax deductible and will make a major difference in the lives of those affected by DeSanto-Shinawi Syndrome.
There is a processing fee of $4 per signup. If a group signs up together, save by only paying one processing fee.
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Shirts are not required for this event. However, wearing DESSH gear plays a huge part in raising awareness. Made with premium quality, you can wear them over and over again showing your support for the disorder.